Some of you already know that there are pictures of Thomas that you can view on the internet, for the people that I haven't told yet, here is the link...
I have updated the pictures this morning.
Thomas had a Tracheostomy performed in surgery yesterday. We can now see his face because his breathing tube (Trachy) is in his neck. This is likely to be a temporary measure and could stay in place for a few months or a bit longer. It means that he now has a safe airway. Thomas is still being assisted to breathe with the ventilator but that will be scaled back and hopefully removed in the next couple of days. It is just supporting him at present while he recovers from this operation.
We hope that Thomas can have his TOF/OA repaired next week, it depends on how well he recovers from this surgery and how he is going with the Pulmonary Hypertension (blood pressure in the arteries going to his lungs). Link to info about TOF/OA is below.
Thank you to everyone who is supporting us with prayers and meals, and thankyou to the drivers who have been helping me get around. Thank you for your visits, flowers, cards and gifts. We are still on the waiting list for Ronald McDonald house, we are hopeful of a room before next week comes around.
If you know of someone who would like an email update please send me their email address and I will include them next time. Feel free to forward this email yourself.
Lots of love from all of us,
Julie, Dean, Rowan & Thomas