Our Baby Thomas: Copy of email I sent to Josephine 25/01/08

Tuesday, February 17, 2009

Copy of email I sent to Josephine 25/01/08

Hi Mum,
Further to the email that I sent Josephine (see below). I have been at the Family Court the last 2 days in a row and I now have a hearing listed for Thursday 31st January. I am making an application for the Federal Police to retrieve Rowan, unless he is returned before then.
He has taken Rowan to Queensland for a holiday, he has not taken his wife with them, she told his solicitor that they will be back on Sunday. It worries me to hear that he has taken Rowan to Queensland as I know that he has a brother living in Maroochydore and I worry that he will take him there to keep Rowan away from me.
A Duty Solicitor at the Family Court called his Solicitor this morning and informed him of my intention to file for a hearing. The solicitor tried to contact him and advise him but he was not answering his Mobile Phone. I have faxed the court documents to him this afternoon. This is very stressful.
Thomas is having a bad day today. He woke up because he was de-saturating and he was very upset. They weren't able to calm him and he had a fairly major event and he had to have sedation. he then had a temperature for about an hour and a half. his pulse was racing too. They took a chest x-ray and swabs of his trachy, and samples of his secretions to see if they could find any bugs. he is cool now and his Pulse is restful and his breathing is calm too. He is even a bit cool. It was scary for a while and I only arrived about half an hour after it started. He was so hot, I stripped his clothes off and took away extra blankets and put a cool cloth on his forehead. I know they are only simple things but I couldn't understand why the nurse hadn't already done that. I suppose she was busy with suction and extra oxygen etc etc.
Anyway it has been a stressy day and I have just about had as much stress as I can take. Good part was that Betty came to visit and she got to have a cuddle of Thomas before all that happened. I hope that he doesn't have any sickness because that will delay surgery.
Sorry I sound not very friendly.
See you soon,
Julie

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About this blog

Thanks for visiting my blog. These are my memory pages. Dedicated to the life of our baby Thomas who spent 4 1/2 months in the neonatal intensive care unit at the Royal Childrens Hospital in Melbourne, this collection of writing and pictures documents his life from his birth in October 2007 until he passed away in February 2008.
I have posted the emails that I wrote to family and friends and some of the photos that I took. Some of the poetry was written by me and some of it I have found in my bereavement travels.
Grief is not logical, I do not know where it will take me day by day, but I have found that it is better if I don't resist, it is better if I let it take me where it will.

Our Beautiful Baby Thomas

Thomas was born on 17th October 2007 and he died 135 days later on the 28th February 2008.
Thomas was born with Down Syndrome, Tracheal Osophageal Fistula and Osophageal Atresia, Tracheal Broncheo Malasia and Pulmonary Hypertension, he had a lot to fight.
On the night he was born Thomas was transferred to the Royal Childrens Hospital in Melbourne for surgery to repair his Osophageus, that is when the Pulmonary Hypertension was discovered and surgery had to be stopped. We waited 15 weeks in the Neonatal Intensive Care Unit until he was well enough to have the surgery again. But in the weeks following surgery the Pulmonary Hypertension became more and more severe, to the point that the doctors told us that there was nothing left to do.
Thomas died with me and his daddy and his brother and his nurse. We held him and talked to him, we watched him go, quietly he slipped away.
I will never be the same again.