For my job I work with people who have an Acquired Brain Injury. I do support work. I help people to achieve as close to an ordinary life as possible after a devastating injury caused by a transport accident. I work with a number of adults each week. One of the people I work with is SM, and he died on the 8th April, last Friday, in the morning at 8.55 am. I painted this portrait of him in August 2009.
I write about SM in my other blog, I have reflected on his situation for the purposes of my homework and assessments for the course I am doing. I am not telling you his name on purpose, and on my other blog I don't use his correct name either. I have worked with him for 2 years, we went out mostly. We have been to the zoo, imax theatre, many beaches, a farm, wildlife sanctuary, the movies (lots of them), shopping, live theatre shows, the library, art galleries, appointments, and on the Friday before he died, we walked the recently completed labyrinth at a local gallery (has significant outdoor sculpture).
That's the background. He wasn't always the easiest person to work with. He didn't say much, didn't eat or drink (he was peg fed), he hated watching me eat or drink (because he loved food). He was often grumpy or downright angry, and even more often he was anxious. But he smiled every time I pointed the camera at him though, he loved having his picture taken. He liked having nice hair, I was planning to take him for a haircut last Friday but all shifts were cancelled because he was sick in hospital. Instead he took his long swept back fringe to the grave.
It was an open casket funeral, and because his family are from India, it was entirely different (culturally) to any funeral I have previously attended. They are christians, so Bible passages were read, songs sung. There was a song sung in Tamil (his first language) which tells of God's comfort being so complete that He is like a mother. The singing was unaccompanied, the singers simply singing, no trills or frills or even eye contact with the mourners. They were simply singing their heart to the Lord. SM lay in his casket in front of the lectern, uncovered, eyes closed and dressed in a very smart blue suit with a fresh white shirt and silk tie. His mother was crying that she wanted to see him like this on his wedding day, looking handsome. He was very handsome. All the mourners were touching him and crying over him and kissing him, his mother was whispering in his ear in a language I don't know, she was devastated, they had to lead her away from him so they could close his casket. She was sobbing, along with many of the men, loudly.
There were about four young children there. One little girl (his niece) who is about three kept asking why he was sleeping and why he was so cold, why didn't he talk. She kissed him and said goodbye. Then asked to say goodbye again. They expressed their grief so openly, unashamedly. It was so sad, and very beautiful too. The funeral was all about how he has run his race and he has gone to the Lord with all his requirements fulfilled, he can now rest peacefully. As he was the eldest son of the family, his parents were recognised for bearing the loss of their first fruit, the position of eldest son is very important in his culture.
I just keep looking at this photo because of his eye. It's almost the last picture I took of him. In life he was confronting to look at, usually dribbling, one side of his body relaxed and unresponsive and one side constantly in motion, tense and experiencing tremors and rigors. He was often muttering strange things, or calling out "please help me" or "I am the King". In this picture (which I have seriously cropped for effect) he is drooling and his head is at an unnatural angle (exactly how he liked it), and the seatbelt was obscuring his face. I didn't even ask him to smile because I was taking the photo for documentation reasons (we had been having a discussion about the safety of the fittings in his car and wheelchair).
He was buried, after a few graveside words we were invited to sprinkle dirt over his casket. The casket was very deep in the ground. I am sure it must be a family plot where others can use the same resting place. Similar to the one we will share with Thomas. It's kind of strange to know your post life address. The family left the graveside and people just dispersed. There was no gathering afterward, people just left to continue their grief privately.
I went home and had a crappy day. Nothing could cheer me up, I tried chocolate, shopping, movies, walks, a workout, shower, comfortable clothes. I was just sad and p'd off with the world. I feel better today, I have processed. I suppose I had to write this, have my own little send off for you Mr Marini.